Association of Dystrophy Associations of Croatia 
Croatian Muscular Dystrophy Association
Nova ves 44, Zagreb, Croatia
Phone: +385 1 46 66 849
Fax: +385 1 46 66 849
sddh@zg.t-com.hr

5. Run for MD 2024 - YOU CAN RUN TOO!

5. Run for MD 2024.

YOU CAN RUN TOO!

May 19-21, 2024 – virtual

May 19th RŠC Jarun – Trešnjevka Island – live

The Federation of Dystrophic Societies of Croatia (SDDH) and the Dystrophic Society Zagreb (DDZ) with financial support Tourist Board of the City of Zagreb and support "Run with your heart" platform as part of the Campaign to Mark May 21st – National Neuromuscular Disease Day organize 5. athletics race Run for MD 2024. which will be held virtually May 19-21, and live on May 19, 2024. at the Jarun Regional Center.

Purpose of the Race is to raise awareness of people with muscular dystrophy (MD) and neuromuscular diseases (NMD), in order to improve their quality of life and achieve the goals of the DDZ and SDDH.

1. RUN FOR MD 2024 – Live Race

Date: Sunday, May 19, 2024
Start of the program: 9:00 a.m.
Location: Zagreb, RŠC Jarun
Race start/finish: RŠC Jarun – Trešnjevka Island

Start of the children's race: 9:30 a.m. – track length 500 m

Start of the main race: 11:00 am – trail length 5 km (semi-circular – from Trešnjevka Island 2.5 km to the right on the road to the refreshment area where there is a turning point to return along the same route on the right side towards the finish line – Trešnjevka Island)

Registration at the link: https://www.stotinka.hr/hrv/utrka/6528/prijava_na_utrku

* people in wheelchairs – trail length 2.5 km (semi-circular from Trešnjevka Island 1.25 km in one direction where there is a turning point for returning to the finish line)

Registration at the link: https://www.stotinka.hr/hrv/utrka/6529/prijava_na_utrku

Program completion: 1:00 PM
The number of competitors is not limited.

The main race is open to anyone over the age of 16. Everyone runs at their own risk. By registering for the race, the competitor waives the possibility of transferring responsibility to the race organizer and confirms their health and willingness to complete the race. The organizer has provided medical protection in accordance with the rules for holding road athletics races.
The application is valid upon payment of the registration fee and acceptance of the rules.
In case of non-attendance at the race, the money paid will not be refunded. 
The starting number is placed exclusively on the chest and must be visible throughout the race. 

Prizes are provided for best time result for 1st, 2nd and 3rd place in the men's and women's categories and in the manual and electric wheelchair categories.

2. RUN FOR MD 2024 – virtual race

Date: 19. to 21.5.2024.

  • It is necessary to run. 5 km using one of the running applications (Strava, etc.) and sending the results (screenshot) to info@ddz.hr

Prizes are provided for best time result for 1st, 2nd and 3rd place in the men's and women's categories.

Registration via the link: https://www.stotinka.hr/hrv/utrka/6530/prijava_na_utrku

  • Disabled people using manual or electric wheelchairs should cross 2.5 km and use some of the applications (Strava, etc.) and send the results (screenshot) to an email info@ddz.hr

Login via link: https://www.stotinka.hr/hrv/utrka/6531/prijava_na_utrku

Prizes are provided for the best time result of the 2.5 km drive for 1st, 2nd and 3rd place in the manual and electric wheelchair category.

_______________________________________________________________________________

Regardless of the distance traveled, everyone who wants to and can support the 5th Run for MD 2024, adults, children and young people, people in wheelchairs, alone or in the company of family, friends, colleagues, associates, acquaintances, walk, run, ride a bike or wheelchair on Jarun or in your neighborhood and thereby improve your own health! The key is to be physically and mentally fit!

The entry fee is 20 EUR.

There is no entry fee for children under 15 years of age.

Payments are made to the bank account of the Zagreb Dystrophy Society:

IBAN: HR6023600001101462323

With the indication: Donation to achieve the goals of DDZ, Name and surname
STARTER PACKAGE includes:

– starting number
– finisher's medal

– gifts from donors

Starting numbers will be collected on race day, Sunday, from 8:30 a.m. to 10:30 a.m. at the starting area (Trešnjevka Island).

We will send the starting package to the participants of the virtual race by mail..
Parental consent for the children's race is signed when collecting the starting number.
Musical entertainment will be provided by Damir Juren – a member of the Zagreb Muscular Dystrophy Society.

Participants can post their participation photos and activity application results on Facebook pages.

DDZ https://www.facebook.com/drustvo.distroficara.zagreb.DDZ

or SDDH https://www.facebook.com/SDDH.1970

using hashtags #DDZ, #SDDH, #MD, #RunForMD2024, #NacionalniDanNMB, #ivasesrcejemisic, #TrciSaSrcem, #tzgz, #HitJeBitFizičkiiMentalnoFit

Invite your friends and encourage others to join in! Let's run with our hearts!

We look forward to your participation and thank you for your support!

Applications for www.stotinka.hr

SDDH

01 46 66 849
sddh@zg.t-com.hr

www.sddh.hr

https://www.facebook.com/SDDH.1970
https://www.instagram.com/savezsddh

DDZ
01 48 48 908
info@ddz.hr

www.ddz.hr

https://www.facebook.com/drustvo.distroficara.zagreb.DDZ
https://www.instagram.com/drustvo_distroficara_zagreb

MD is a genetic disease that causes weakness, loss of muscle strength and reduction of muscle volume. In addition to numerous secondary difficulties, mobility is impaired, leading to the loss of the ability to walk independently. Over 80% patients move around using manual or electric wheelchairs. Due to muscle weakness, damage to vital organs develops and there is a weakening of the functions of breathing, swallowing and heart failure, which are also the main causes of mortality. The most severe forms of MD are: Spinal muscular atrophy - SMA, Duchenne muscular dystrophy - DMD and Amyotrophic lateral sclerosis - ALS.

SDDH is a unique network of 27 associations in the Republic of Croatia, whose main goal is to improve the quality of life of people suffering from muscular dystrophy and related neuromuscular diseases. SDDH and its member associations at the local and national level provide support to people with MD through various programs and activities to improve the quality of life, and in addition, they actively participate in solving numerous social challenges in the community and creating policies of importance for people with disabilities.

DDZ is a non-profit organization that brings together 312 people with muscular dystrophy, from children to adults, in the City of Zagreb and Zagreb County, with the aim of improving the quality of life. DDZ implements a number of programs/projects for its members with the aim of improving and advancing the quality of life. The following services are provided to its members: information and assistance, counseling, professional assessment, psychosocial support, assistance in joining educational and regular education programs, personal assistance service, education for people with MD, family members and experts, social inclusion activities, leisure activities, information and counseling in the field of physical therapy, occupational therapy services, psychosocial support through the provision of encouragement for the development of functional skills of users, mobile team service (social worker, physiotherapist, occupational therapist), and provides a specialized adapted transportation service.                     

Tags: RUNforMD

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