Association of Dystrophy Associations of Croatia 
Croatian Muscular Dystrophy Association
Nova ves 44, Zagreb, Croatia
Phone: +385 1 46 66 849
Fax: +385 1 46 66 849
sddh@zg.t-com.hr

Treatment and exercise challenges in MD and NMB

Izazovi-liječenja-i-tjelovježbe-kod-MD-i-NMB

On Wednesday, December 20, 2023, SDDH held an education session for people with muscular dystrophy and neuromuscular diseases and their family members entitled "Challenges of Treatment and Exercise in Muscular Dystrophy (MD) and Neuromuscular Diseases (NMD)".

The training was opened with welcoming remarks by Marica Mirić, president of SDDH, and Nataša Trošt, representative of Biogen Pharma doo, which donated funds to enable the training, followed by a screening of the SDDH documentary film "Experiences of treating people with SMA – Buds of new hope".

In her review of the film, Marica Mirić emphasized the importance of the participation of doctors and the professional observations and conclusions that the film brings, as well as the presentation of personal experiences of people with spinal muscular atrophy (SMA) after entering treatment, which especially encourages the community of people with SMA to take the necessary steps to be included in the treatment process.

After the screening of the film, Slobodan Marinković, expert associate – physiotherapist at SDDH, gave a presentation on the topic of the importance of exercise in people with NMB, or why it is crucial to exercise if you are taking medication for MD or NMB. He pointed out that the body does not like to spend energy where it does not need to and that when inactive, seeing that the muscles are not being used, the body slowly “allows” the muscles to start deteriorating, which is why it is necessary to exercise regularly within the limits of individual capabilities. Through the discussion, he called on everyone to use the physiotherapy opportunities they have in their local communities and in this way, especially if they are taking any of the available medications, get the most out of the medication, but also for those who exercise regularly and see the effect of it to encourage their friends and acquaintances to do the same.

Related news

Shddh

Knowledge centers

You can find out all the important information and advice in a few mouse clicks

National Foundation for the Development of Civil Society
National Foundation for the Development of Civil Society
Read..
Knowledge centers for social development
Knowledge centers for social development
Read..
Knowledge base
Knowledge base
Read it