{"id":11701,"date":"2024-03-19T11:12:00","date_gmt":"2024-03-19T10:12:00","guid":{"rendered":"https:\/\/test.hl-dizajn.com\/?p=11701"},"modified":"2024-04-28T10:55:52","modified_gmt":"2024-04-28T08:55:52","slug":"5-run-for-md-2024-trcati-mozes-i-ti","status":"publish","type":"post","link":"https:\/\/test.hl-dizajn.com\/en\/5-run-for-md-2024-trcati-mozes-i-ti\/","title":{"rendered":"5. Run for MD 2024 - YOU CAN RUN TOO!"},"content":{"rendered":"<p><strong>5. Run for MD 2024.<\/strong><\/p>\n\n\n\n<p><strong>YOU CAN RUN TOO!<\/strong><\/p>\n\n\n\n<p><strong>May 19-21, 2024 \u2013 virtual<\/strong><\/p>\n\n\n\n<p><strong>May 19th R\u0160C Jarun \u2013 Tre\u0161njevka Island \u2013 live<\/strong><\/p>\n\n\n\n<p><strong>The Federation of Dystrophic Societies of Croatia (SDDH) and the Dystrophic Society&nbsp;<\/strong><strong>Zagreb (DDZ)&nbsp;<\/strong>with financial support&nbsp;<strong>Tourist Board of the City of Zagreb&nbsp;<\/strong>and support&nbsp;<strong>&quot;Run with your heart&quot; platform&nbsp;<\/strong>as part of the Campaign to Mark&nbsp;<strong>May 21st \u2013 National Neuromuscular Disease Day&nbsp;<\/strong>organize&nbsp;<strong>5.<\/strong>&nbsp;athletics race&nbsp;<strong>Run for MD 2024.<\/strong>&nbsp;which will be held&nbsp;<strong>virtually May 19-21, and live on May 19, 2024<\/strong>. at the Jarun Regional Center.<\/p>\n\n\n\n<p><strong>Purpose of the Race<\/strong><strong>&nbsp;is to raise awareness of people with muscular dystrophy (MD) and neuromuscular diseases (NMD), in order to improve their quality of life and achieve the goals of the DDZ and SDDH.<\/strong><\/p>\n\n\n\n<p><strong>1. RUN FOR MD 2024 \u2013 Live Race<\/strong><\/p>\n\n\n\n<p><strong>Date:&nbsp;<\/strong>Sunday, May 19, 2024<br><strong>Start of the program:&nbsp;<\/strong>9:00 a.m.<br><strong>Location:&nbsp;<\/strong>Zagreb, R\u0160C Jarun<br><strong>Race start\/finish:&nbsp;<\/strong>R\u0160C Jarun \u2013 Tre\u0161njevka Island<\/p>\n\n\n\n<p><sup><strong>Start of the children&#039;s race:<\/strong><strong>&nbsp;9:30 a.m. \u2013 track length 500 m<\/strong><\/sup><\/p>\n\n\n\n<p><sup><strong>Start of the main race:<\/strong><strong>&nbsp;11:00 am \u2013 trail length 5 km (semi-circular \u2013 from Tre\u0161njevka Island 2.5 km to the right on the road to the refreshment area where there is a turning point to return along the same route on the right side towards the finish line \u2013 Tre\u0161njevka Island)<\/strong><\/sup><\/p>\n\n\n\n<p><strong>Registration at the link:<\/strong>&nbsp;<a href=\"https:\/\/www.stotinka.hr\/hrv\/utrka\/6528\/prijava_na_utrku\">https:\/\/www.stotinka.hr\/hrv\/utrka\/6528\/prijava_na_utrku<\/a><\/p>\n\n\n\n<p><strong>* people in wheelchairs \u2013 trail length 2.5 km (semi-circular from Tre\u0161njevka Island 1.25 km in one direction where there is a turning point for returning to the finish line)<\/strong><\/p>\n\n\n\n<p><strong>Registration at the link:&nbsp;<\/strong><a href=\"https:\/\/www.stotinka.hr\/hrv\/utrka\/6529\/prijava_na_utrku\">https:\/\/www.stotinka.hr\/hrv\/utrka\/6529\/prijava_na_utrku<\/a><\/p>\n\n\n\n<p><strong>Program completion:<\/strong>&nbsp;1:00 PM<br>The number of competitors is not limited.<\/p>\n\n\n\n<p>The main race is open to anyone over the age of 16. Everyone runs at their own risk. By registering for the race, the competitor waives the possibility of transferring responsibility to the race organizer and confirms their health and willingness to complete the race. The organizer has provided medical protection in accordance with the rules for holding road athletics races.<br>The application is valid upon payment of the registration fee and acceptance of the rules.<br>In case of non-attendance at the race, the money paid will not be refunded.&nbsp;<br>The starting number is placed exclusively on the chest and must be visible throughout the race.&nbsp;<\/p>\n\n\n\n<p>Prizes are provided for&nbsp;<strong>best time result for 1st, 2nd and 3rd place in the men&#039;s and women&#039;s categories and in the manual and electric wheelchair categories.<\/strong><\/p>\n\n\n\n<p><strong>2. RUN FOR MD 2024 \u2013 virtual race<\/strong><\/p>\n\n\n\n<p><strong>Date: 19. to 21.5.2024.<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>It is necessary to run.&nbsp;<strong>5 km&nbsp;<\/strong>using one of the running applications (Strava, etc.) and sending the results (screenshot) to info@ddz.hr<\/li>\n<\/ul>\n\n\n\n<p>Prizes are provided for&nbsp;<strong>best time result for 1st, 2nd and 3rd place in the men&#039;s and women&#039;s categories.<\/strong><\/p>\n\n\n\n<p><strong>Registration via the link:<\/strong>&nbsp;<a href=\"https:\/\/www.stotinka.hr\/hrv\/utrka\/6530\/prijava_na_utrku\">https:\/\/www.stotinka.hr\/hrv\/utrka\/6530\/prijava_na_utrku<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Disabled people using manual or electric wheelchairs should cross&nbsp;<strong>2.5 km<\/strong>&nbsp;and use some of the applications (Strava, etc.) and send the results (screenshot) to an email&nbsp;<a href=\"mailto:info@ddz.hr\">info@ddz.hr<\/a><\/li>\n<\/ul>\n\n\n\n<p><strong>Login via link:<\/strong>&nbsp;<a href=\"https:\/\/www.stotinka.hr\/hrv\/utrka\/6531\/prijava_na_utrku\">https:\/\/www.stotinka.hr\/hrv\/utrka\/6531\/prijava_na_utrku<\/a><\/p>\n\n\n\n<p>Prizes are provided for&nbsp;<strong>the best time result of the 2.5 km drive for 1st, 2nd and 3rd place in the manual and electric wheelchair category.<\/strong><\/p>\n\n\n\n<p>_______________________________________________________________________________<\/p>\n\n\n\n<p>Regardless of the distance traveled, everyone who wants to and can support the 5th Run for MD 2024, adults, children and young people, people in wheelchairs, alone or in the company of family, friends, colleagues, associates, acquaintances, walk, run, ride a bike or wheelchair on Jarun or in your neighborhood and thereby improve your own health!&nbsp;<strong>The key is to be physically and mentally fit!<\/strong><\/p>\n\n\n\n<p><strong>The entry fee is 20 EUR.<\/strong><\/p>\n\n\n\n<p><strong>There is no entry fee for children under 15 years of age.<\/strong><\/p>\n\n\n\n<p>Payments are made to the bank account of the Zagreb Dystrophy Society:<\/p>\n\n\n\n<p><strong>IBAN: HR6023600001101462323<\/strong><\/p>\n\n\n\n<p><strong>With the indication: Donation to achieve the goals of DDZ, Name and surname<\/strong><br><strong>STARTER PACKAGE includes<\/strong>:<\/p>\n\n\n\n<p><strong>\u2013 starting number<br>\u2013 finisher&#039;s medal<\/strong><br><strong>\u2013 gifts from donors<\/strong><\/p>\n\n\n\n<p><strong>Starting numbers will be collected on race day, Sunday, from 8:30 a.m. to 10:30 a.m. at the starting area (Tre\u0161njevka Island).<\/strong><\/p>\n\n\n\n<p><strong>We will send the starting package to the participants of the virtual race by mail.<\/strong><strong>.<\/strong><br>Parental consent for the children&#039;s race is signed when collecting the starting number.<br>Musical entertainment will be provided by Damir Juren \u2013 a member of the Zagreb Muscular Dystrophy Society.<\/p>\n\n\n\n<p>Participants can post their participation photos and activity application results on Facebook pages.<\/p>\n\n\n\n<p><strong>DDZ&nbsp;<\/strong><a href=\"https:\/\/www.facebook.com\/drustvo.distroficara.zagreb.DDZ\">https:\/\/www.facebook.com\/drustvo.distroficara.zagreb.DDZ<\/a><\/p>\n\n\n\n<p><strong>or SDDH&nbsp;<\/strong><a href=\"https:\/\/www.facebook.com\/SDDH.1970\">https:\/\/www.facebook.com\/SDDH.1970<\/a><\/p>\n\n\n\n<p>using hashtags #DDZ, #SDDH, #MD, #RunForMD2024, #NacionalniDanNMB, #ivasesrcejemisic, #TrciSaSrcem, #tzgz, #HitJeBitFizi\u010dkiiMentalnoFit<\/p>\n\n\n\n<p>Invite your friends and encourage others to join in! Let&#039;s run with our hearts!<\/p>\n\n\n\n<p><strong>We look forward to your participation and thank you for your support!<\/strong><\/p>\n\n\n\n<p><strong>Applications for&nbsp;<\/strong><a href=\"http:\/\/www.stotinka.hr\/\"><strong>www.stotinka.hr<\/strong><\/a><\/p>\n\n\n\n<p>SDDH<\/p>\n\n\n\n<p>01 46 66 849<br><a href=\"mailto:sddh@zg.t-com.hr\">sddh@zg.t-com.hr<\/a><\/p>\n\n\n\n<p><a href=\"http:\/\/www.sddh.hr\/\">www.sddh.hr<\/a><\/p>\n\n\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.facebook.com\/SDDH.1970\n<\/div><\/figure>\n\n\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.instagram.com\/savezsddh\n<\/div><\/figure>\n\n\n\n<p>DDZ<br>01 48 48 908<br><a href=\"mailto:info@ddz.hr\">info@ddz.hr<\/a><\/p>\n\n\n\n<p><a href=\"http:\/\/www.ddz.hr\/\">www.ddz.hr<\/a><\/p>\n\n\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.facebook.com\/drustvo.distroficara.zagreb.DDZ\n<\/div><\/figure>\n\n\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.instagram.com\/drustvo_distroficara_zagreb\n<\/div><\/figure>\n\n\n\n<p>MD is a genetic disease that causes weakness, loss of muscle strength and reduction of muscle volume. In addition to numerous secondary difficulties, mobility is impaired, leading to the loss of the ability to walk independently. Over 80% patients move around using manual or electric wheelchairs. Due to muscle weakness, damage to vital organs develops and there is a weakening of the functions of breathing, swallowing and heart failure, which are also the main causes of mortality. The most severe forms of MD are: Spinal muscular atrophy - SMA, Duchenne muscular dystrophy - DMD and Amyotrophic lateral sclerosis - ALS.<\/p>\n\n\n\n<p>SDDH is a unique network of 27 associations in the Republic of Croatia, whose main goal is to improve the quality of life of people suffering from muscular dystrophy and related neuromuscular diseases. SDDH and its member associations at the local and national level provide support to people with MD through various programs and activities to improve the quality of life, and in addition, they actively participate in solving numerous social challenges in the community and creating policies of importance for people with disabilities.<\/p>\n\n\n\n<p>DDZ is a non-profit organization that brings together 312 people with muscular dystrophy, from children to adults, in the City of Zagreb and Zagreb County, with the aim of improving the quality of life. DDZ implements a number of programs\/projects for its members with the aim of improving and advancing the quality of life. The following services are provided to its members: information and assistance, counseling, professional assessment, psychosocial support, assistance in joining educational and regular education programs, personal assistance service, education for people with MD, family members and experts, social inclusion activities, leisure activities, information and counseling in the field of physical therapy, occupational therapy services, psychosocial support through the provision of encouragement for the development of functional skills of users, mobile team service (social worker, physiotherapist, occupational therapist), and provides a specialized adapted transportation service.&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/www.sddh.hr\/userfiles\/images\/WhatsApp%20Image%202024-03-19%20at%2009_10_02.jpeg\" alt=\"\"\/><\/figure>\n\n\n\n<p><strong>Tags:<\/strong>&nbsp;<a href=\"https:\/\/www.sddh.hr\/savez-drustava-distroficara-hrvatske-aktualnosti\/run-for-md\">RUNforMD<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>5. Run for MD 2024. TR\u010cATI MO\u017dE\u0160 I TI! 19. &#8211; 21. svibnja 2024. &#8211; virtualno 19. svibnja R\u0160C Jarun &#8211; Otok Tre\u0161njevka &#8211; u\u017eivo Savez dru\u0161tava distrofi\u010dara Hrvatske (SDDH) i&nbsp;Dru\u0161tvo distrofi\u010dara&nbsp;Zagreb (DDZ)&nbsp;uz financijsku potporu&nbsp;Turisti\u010dke zajednice Grada Zagreba&nbsp;te podr\u0161ku&nbsp;platforme \u201eTr\u010di sa srcem\u201c&nbsp;u okviru Kampanje obilje\u017eavanja&nbsp;21. svibnja \u2013 Nacionalnog dana osoba oboljelih od neuromuskularnih bolesti&nbsp;organiziraju&nbsp;5.&nbsp;atletsku utrku&nbsp;Run [&hellip;]<\/p>","protected":false},"author":1,"featured_media":11704,"comment_status":"closed","ping_status":"closed","sticky":true,"template":"","format":"standard","meta":{"footnotes":""},"categories":[16],"tags":[103],"class_list":["post-11701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sddh-vijesti","tag-run-for-md-2024"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>5. 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TR\u010cATI MO\u017dE\u0160 I TI! 19. &#8211; 21. svibnja 2024. &#8211; virtualno 19. svibnja R\u0160C Jarun &#8211; Otok Tre\u0161njevka &#8211; u\u017eivo Savez dru\u0161tava distrofi\u010dara Hrvatske (SDDH) i&nbsp;Dru\u0161tvo distrofi\u010dara&nbsp;Zagreb (DDZ)&nbsp;uz financijsku potporu&nbsp;Turisti\u010dke zajednice Grada Zagreba&nbsp;te podr\u0161ku&nbsp;platforme \u201eTr\u010di sa srcem\u201c&nbsp;u okviru Kampanje obilje\u017eavanja&nbsp;21. svibnja \u2013 Nacionalnog dana osoba oboljelih od neuromuskularnih bolesti&nbsp;organiziraju&nbsp;5.&nbsp;atletsku utrku&nbsp;Run [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/test.hl-dizajn.com\/en\/5-run-for-md-2024-trcati-mozes-i-ti\/\" \/>\n<meta property=\"og:site_name\" content=\"SDDH\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/SDDH.1970\/?_rdc=1&amp;_rdr\" \/>\n<meta property=\"article:published_time\" content=\"2024-03-19T10:12:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-28T08:55:52+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/test.hl-dizajn.com\/wp-content\/uploads\/2024\/03\/WhatsApp-Image-2024-03-19-at-08_50_29.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1600\" \/>\n\t<meta property=\"og:image:height\" content=\"1067\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"SDDH\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"SDDH\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/test.hl-dizajn.com\/5-run-for-md-2024-trcati-mozes-i-ti\/\",\"url\":\"https:\/\/test.hl-dizajn.com\/5-run-for-md-2024-trcati-mozes-i-ti\/\",\"name\":\"5. 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